Jono Lancaster refuses to be limited by his condition and wants to inspire children living with Treacher Collins’ syndrome to live as full and happy lives as he has.
Lancaster has made it his life’s work to inspire other people who have the condition which prevents the skull, jawbones and cheeks from developing fully. So he flew to Adelaide in Australia in mid November to meet a two-year old boy called Zackary who is also living with Treacher Collin’s syndrome.
Zackary’s mum had contacted him over Facebook when she saw he was planning a trip there. She told the Adelaide Advertiser, “[Jono] is a celebrity to us — he’s a huge inspiration.”
Lancaster said: “I grew up with Treacher Collins and I kind of felt like I was on my own and I felt like I was the only one out in the world that was like me.” He explained that he is meeting children around Australia who live with the condition and he hopes to inspire them to lead full and happy lives. “I would have loved to have met somebody like myself when I was younger … somebody who had got a job, got a partner and said to me ‘these are the things you can do, you can achieve.”
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